I no longer have a mum

mum and I Dec 2015
The trauma in the last week has left me numb
I write this now, just one day after her death
I stepped out of the hospital room and she took her very last breath
The nurse said it’s common, as I held my mum’s warm hand
To wait until the family is gone, before their life will end
I get that as I know full well how our mind controls our body
That reminds me of my dad’s nickname for my mum, it’s Dolly
I know that time will unfold more feelings and thoughts
But for now, I’m just OK, and sometimes I feel frought
I loved my mum despite her moods, as most of it she could not control
Schizophrenia since her twenties, all her life it was so cruel
Dementia then took over after a fall down the stairs
Despite three visits to the GP, he didn’t realise what was clear
She had too much Lithium in her blood, making her delirious and caused the fall
When she nearly died four years ago, but her strength it conquered all

mum and dad June 2017 at the carvery enjoying a nice dessert, how quickly things can change
The brain scan showed damage from mini-strokes, vascular dementia was the name
All I know is my mum slowly disappeared, her personality was never the same
First her memory went, then behaviour became even more erratic than before
Her mobility, eating, her continence, it all gradually became much worse
I cherished every day out, on our own for lunch or with dad
Knowing it would gradually end, her best years she’d already had
I look at Titus my black and white cat, his visits to mum very much cheered her

mum and I Dec 2015
As he entered the room, her eyes lit up, she relaxed as she stroked his lovely soft fur
A photo of me and Titus the cat sat at the end of her bed
If she got agitated or sad or upset, the carers always said
They’d show her the photo and talk of us both and she smiled and called out my name
I’m so grateful that she never forgot who I was, even though she was never the same
She remembered my dad, and needed him most, his visits must have been so soothing
Even when she was upset, or calling us names, she told us of her love, it was all so very moving
Her mobility worsened, she was stuck in the chair, incontinence that came next
Her brain cells lessened, her confusion got worse, concentration became less and less
Then her eating was erratic, her fingers she’d use, to pick up her lunch or her dinner
She lost lots of weight, her face and body changed as she weakened and got very much thinner
Then stuck in her bed, her swallowing got worse, her frailty became very clear
I still took in old photos and showed them to her, recognition I held very dear
That’s me or that’s Sandra, or that’s Desmond or dad, she’d know me even when I was two
Despite her failing mind and body, she’d know me and say I love you
Sometimes we were ‘pigs’ she’d say ‘you don’t like me’, or she’d cry and be crushed with fear
The next minute we’re great, or her eyes would close, words repeated, dementia was clear
The words ‘yellow’ or ‘what colour’ they featured a lot, as her arms reached out before her
Or ‘lily of the valley’ that too, over and over, when that started we knew we couldn’t reach her
And then she was sick, it went down the wrong way, caused Pneumonia right in her lungs
Off to hospital she went, I knew she’d not come out, there was not much time now left for fun
Just over a week we watched her go down, her swallowing went, the infection would not go away
We made the choice to stop all the treatment, oh what an awfully sad day
There was more to come as she wouldn’t give up, we watched her body break down
The medicines came, as the (death) rattle began, her consciousness began to wane
Just a few moments left, to see her stunning blue eyes, focus on mine or the others
Michael, my dad, we were there in that room, and even all three of my brothers
Then the last call came, to me in the morning, the nurse said her breathing had changed
We got in the car and phoned my dad but he somehow sounded deranged
We knew he wasn’t well, he’d been coughing last night, we’d taken some medicines round
I went to see mum, Michael went to my dad, an ambulance was arranged
Dad in A&E my mum just upstairs it all became so surreal
Antibiotic drips started, for my dad, weakness in my body I could feel
As I watched my mum passing, one brother was there, and Michael was right by my side
We all visited dad, to see how he was, as my mum’s breathing began to subside
I went up alone to find her all quiet, but warm to the touch, I called the nurse in
She confirmed she’d just gone and she closed the door, as my mind began to cave in
I kissed her goodbye, I talked to her loads, I said everything I needed to say
As I sobbed for ages, reminiscing lots, oh boy, what a grave day
She’s out of pain now, we all agreed, she’d had enough of suffering in her time
She’d said many times, we went down to tell dad, in his hospital ward, he was going to be fine
We all are relieved, she will suffer no more, and the grieving had already begun
But it’s much worse now as I realise, I no longer have a mum.
Rest in Peace Mummy, 26th February 2019 XXXXXXX




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Sending you lots of gentle hugs and love. Such a heartbreaking disease and I can only hope that one day soon we will have a cure. Unfortunately I know it will come too late for my beautiful mum but please please let’s keep raising awareness that this disease can be dealt with once and for all. Hugs
Yes, Michelle, I do hope they will find ways and awareness is key. Wishing you and your mum hugs too x
Having lived through similar I have tears in my eyes reading this. So sorry for your loss. Your mum, like mine, will always walk with you.
They will always walk with us, yes, Jane. Sorry for your loss x
sending lots of love to you. such a difficult time. all those memories all that love. take time for yourself lovely.
Thank you Diane xxx
What a brave and open account. First of all I am truly sorry for your loss. And second thank you for sharing. A sad time but peace will come and you will remember the good not the sadness. Sending you lots of love, Debz x
Thank you Debz xxx